Howard’s nephew

Along my journey I've met some incredible people. Too many, if I really admit it to myself (557 emails are reminding me of that today). But, this evening I just started up Skype and Howard Greenstein told me about his nephew, named Sawyer, who is in a rehab hospital recovering from an unknown disease which has left him paralyzed. He's 12. Same age as my son.

He hasn't been able to move his legs for the past two weeks.

I can't even imagine going through that as a family. But, Howard is coping the same way I coped: turn to our global village and talk about it and try to start a meme to lift his nephew's spirits.

You might have remembered hearing Howard's name before. He ran the Twin Towers Fund, which raised millions of dollars in support for 9/11 victims.

Life is cruel sometimes. I'll go and take a picture and see if we can bring a smile to Sawyer's face.

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11 thoughts on “Howard’s nephew

  1. I have a family member who just went in to the hospital with something that sounds like this mystery disease. The doctors don’t know what to tell her. If anyone out there knows what the diagnosis could be, please post to the comments. Thanks!

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  2. I have a family member who just went in to the hospital with something that sounds like this mystery disease. The doctors don’t know what to tell her. If anyone out there knows what the diagnosis could be, please post to the comments. Thanks!

    Like

  3. My oldest daughter–now 17–is retarded, has cerebral palsey, scoliosis, and club feet. IQ tests out at the level of a 3 year old. The scoliosis was surgically corrected by an 11 hour spinal fusion operation, followed by 6 mos. in a full body cast. Club feet were corrected through two operations and months in casts. When I hear people complain about their normal kids’ normal problems, I could just scream. People should count there blessings every day. There is always someone in a situation worse than yours. Accept your fate, make the very best of it, and understand that life isn’t a packaged product with a satisfaction guarantee. It’s a mystery, and a blessing to be able to experience it, “bad” things and all. There are no drugs or medical procedures that can give my daughter a normal IQ. I love her just the same, and am happy to have her and my 2 other “normal” kids. What I have learned from Rachel is how NOT to give a hoot about all the stupid, silly things I see other people caring about, and instead, to enjoy everything this life has to offer as best I can.

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  4. My oldest daughter–now 17–is retarded, has cerebral palsey, scoliosis, and club feet. IQ tests out at the level of a 3 year old. The scoliosis was surgically corrected by an 11 hour spinal fusion operation, followed by 6 mos. in a full body cast. Club feet were corrected through two operations and months in casts. When I hear people complain about their normal kids’ normal problems, I could just scream. People should count there blessings every day. There is always someone in a situation worse than yours. Accept your fate, make the very best of it, and understand that life isn’t a packaged product with a satisfaction guarantee. It’s a mystery, and a blessing to be able to experience it, “bad” things and all. There are no drugs or medical procedures that can give my daughter a normal IQ. I love her just the same, and am happy to have her and my 2 other “normal” kids. What I have learned from Rachel is how NOT to give a hoot about all the stupid, silly things I see other people caring about, and instead, to enjoy everything this life has to offer as best I can.

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  5. Robert,

    Have him discuss with the doctors the possibility (fortunately remote) of a spinal cord stroke. This happened to my son’s best friend. Played golf on Wednesday, felt bad on Thursday, couldn’t move from the sternum down on Friday. Prior to looking into nerve damage in the spinal cord, it was a “mystery paralysis.”

    Tim

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  6. Robert,

    Have him discuss with the doctors the possibility (fortunately remote) of a spinal cord stroke. This happened to my son’s best friend. Played golf on Wednesday, felt bad on Thursday, couldn’t move from the sternum down on Friday. Prior to looking into nerve damage in the spinal cord, it was a “mystery paralysis.”

    Tim

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  7. Could be lyme disease as well; often missed by docs.

    Health Topics A – Z
    http://www.bccdc.org/topic.php?item=83

    >What are the Symptoms?
    >
    >If you have the following symptoms within days or weeks after being bitten by
    >a tick, please report them to your family doctor immediately. Tell your doctor
    >when and where you were bitten by a tick.
    >
    > 1. General symptoms of fever headache, muscle and joint pains, fatigue or
    >weakness of the muscles of the face.
    > 2. Skin rash, especially one that looks like a “Bull’s Eye”. It may or may
    >not be where the bite was.
    > 3. In some cases paralysis may occur. The paralysis usually starts in the
    >feet and legs and gradually works its way up to the upper body, arms and head.
    >This paralysis can develop from within a few hours to several days.
    >

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  8. Could be lyme disease as well; often missed by docs.

    Health Topics A – Z
    http://www.bccdc.org/topic.php?item=83

    >What are the Symptoms?
    >
    >If you have the following symptoms within days or weeks after being bitten by
    >a tick, please report them to your family doctor immediately. Tell your doctor
    >when and where you were bitten by a tick.
    >
    > 1. General symptoms of fever headache, muscle and joint pains, fatigue or
    >weakness of the muscles of the face.
    > 2. Skin rash, especially one that looks like a “Bull’s Eye”. It may or may
    >not be where the bite was.
    > 3. In some cases paralysis may occur. The paralysis usually starts in the
    >feet and legs and gradually works its way up to the upper body, arms and head.
    >This paralysis can develop from within a few hours to several days.
    >

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